Friday, April 30, 2010

First Week Review

We are all enjoying our newest gift as you can see from these's a family project! Everyone gets to take turns feeding the baby with the milk I've pumped. She is eating every 3 hours and doing really great. She's already past her birth weight and we can tell she's starting to chub up!
On Thursday I took her to the cardiologist just to make sure her heart was as good and healthy as it sounds. They did an echocardiogram as well as an EKG and they found that she actually is missing an important flap between the left and right ventricles of her heart. She will need open heart surgery to fix this problem! We are broken hearted for her little body to have to undergo such a procedure. They hope she can withstand the stress on her heart until she is at least 6 months old. This is a common heart defect with Downs, but it's not common for us!!
Please pray that Charlotte's heart will stay strong for a long time so she can grow as big as possible before the surgery. We trust that God is in control of all things and that all her days are known by Him. He tells us that "all our days were ordained before one of them came to be" (Psalm 139) and Jesus tells us "Who of you by worrying can add a single hour to his life? Therefore do not worry about tomorrow for tomorrow will worry about itself. Each day has enough trouble of its own." (Matt. 6:27 & 34)
So we will live each day at a time, taking whatever comes with trust in our good God.  

Giving Charlotte a pedicure (she's got really dry hands and feet).


Diane said...

I love the picture of Benjamin with Charlotte! I love his smile. Charlotte is so cute. We will be praying about her heart and for your whole family! Love, Diane.

Angie Tolpin said...

So Sweet to see how much everyone is enjoying her!

Anonymous said...

We continue to pray for your precious family! She is beautiful!

Kim and Kris said...

so sweet seeing them all nurturing her...I guess that is one good thing about not being able to nurse her...sharing the love!

hartelijk said...

Hi, i 'accedentally' stumbled over your blog while googling 'stayathomemissionary'

First my congratulations on the birth of your sweet daughter Charlotte,
i wish you many, many days of happieness, praying her heart and health will be strong!

God bless you and your family!

Hope to visit here again, it's really nice and inspiring...